It is useful to restrict the definition of futility to a medical determination, rather than a patient's conclusion. There are well established principles and laws supporting a patient's right to refuse therapies which she considers futile, disproportionately burdensome, or morally objectionable with or without the concurrence of her physician. The current debate focuses on the circumstance of a physician's conclusion that a therapy is futile, either absent a patient's own preference or in the face of a dissenting conclusion by a patient or proxy.
BrettA.S.McCulloughL.B., “When Patients Request Specific Interventions: Defining the Limits of the Physician's Obligation.”N Engl J Med1986; 315(21): 1347–1351; CenterHastings, Guidelines on the Termination of Life-Sustaining Treatment and the (lare of the Dying, Briarcliff Manor, NY1987, p. 32; TomlinsonT.BrodyH., “Futility and the Ethics of Resuscitation”, JAMA1990; 264(10): 1276–80; YoungnerS.J., “Futility in Context,”JAMA1989; 264(10): 1295–96.
4.
ParisJ.J.CroneR.K.ReardonF.“Physician's Refusal of Requested Treatment: The Case of Baby L.”New Engl J Med1990; 322(14): 1012–1015; MilesS.H., “Informed Demand for Non-Beneficial Medical Treatment,”New Eng J Med1991: 325; 512–15; ReidA., “After Transplant, a Fight over Care,”Boston Sunday Globe, June 23, 1991, pp. A21,23; RossL., “Family Says Treatment Withheld,”Florida Times Union, May 23, 1991, pp. A1–2.
5.
See Tomlinson, supra note 2; see Paris, supra note 3; BlackhallL., “Must We Always Do CPR?”New Eng J Med1987; 317(20): 1281–84; BraithwaiteS.ThomasinaD.C., “New Guidelines on Foregoing Life-Sustaining Treatment in Incompetent Patients: An Anti-Cruelty Policy,”Annals Int Med1986; 104: 711–15; HacklerC.J.HillerF.C., “Family Consent to Orders not to Resuscitate,”JAMA1990; 264(10): 1281; MooreF.D., “The Desperate Case: (Costs, Applicability, Research, Ethics),”JAMA1989; 261(10): 1483–84.
6.
WeiserB., “A Question of Letting Go,”Washington Post, July 14, 1991, PP. A1, 18–19; SmothersR.D., “Atlanta Court Bars Efforts to End Life Support for Stricken Girl, 13,”New York Times Oct. 18, 1991, p. A10; In re Doe, Super. Ct., Fulton Cnty, Ga. CAF D-93064.
7.
See Tomlinson, supra note 2; SchneidermanL.J.JeckerN.S.JonsenA.R., “Medical Futility: Its Meaning and Ethical Implications,”Annals Int Med1990; 112: 949–54.
8.
EckholmE., “Patients and Insurers Clash on Therapy's Outer Limits,”New York Times, September 19, 1991, A1, A12.
9.
See Tomlinson, supra note 2.
10.
See Schneiderman, supra note 6.
11.
ChervernakF.A.McCulloughL.B., “Justified Limits on Refusing Intervention,”Hastings Center Report1991; 21(2): 12–17.
12.
PearlmanR.A.MilesS.H.ArnoldR.M., “Empiric Research in Medical Ethics,”J Theoret Med1991; MurphyD.J.MatcharD.B., “Life-Sustaining Therapy: A Model for Appropriate Use,”JAMA1990; 264: 2103–08; KnausW.A.WagnerD.P.LynnJ., “Short-Term Mortality Predictions for Critically Ill Hospitalized Adults: Science and Ethics,”Science1991; 254;389–94.
13.
See Schneiderman, supra note 6; LantosJ.D.MilesS.H.SilversteinM.D., “Survival after Cardiopulmonary Resuscitation in Babies of Very Low Birth Weight,”New Eng J Med1988; 318(2): 91–5; YoungnerS.J., “Who Defines Futility?”JAMA1988; 260(14): 2094–5.
14.
American Thoracic Society, “Withholding and Withdrawing Life-Sustaining Therapy,”Annals Int Med1991; 115(6): 478–486; Task Force on Ethics, Society of Critical Care Medicine, “Consensus Report on the Ethics of Foregoing Life-Sustaining Treatments in the Critically Ill,”Critical Care Med1990; 18: 1435–39.
15.
See Schneiderman, supra note 6.
16.
Council on Ethical and Judicial Affairs, AMA, “Guidelines for the Appropriate Use of Do-Not-Rcsuscitate Orders,”JAMA1991; 265: 1868–71; Faber-LangendoenK., “Resuscitation of Patients with Metastatic Cancer: Is Transient Benefit Still Futile?”Archives Int Med1991; 151: 235–9.
17.
See Miles, supra note 3.
18.
See Hackler, supra note 4; see AMA, supra note 15; see Faber-Langendoen, supra note 15; MurphyD.J., “Do-Not-Resuscitate Orders: Time for Reappraisal in Long-Term Care Institutions,”JAMA1988; 260(14): 2098–2101; TaffettG.E.TeasdaleT.A.LuchiR.J., “In Hospital Cardiopulmonary Resuscitation,”JAMA1988; 260: 2069–72.
19.
JeckerN.S., “Knowing When to Stop: The Limits of Medicine,”Hastings Center Report1991; 21(3): 5–8; AmundsenD.W., “The Physician's Obligation to Prolong Life: A Medical Duty without Classical Roots,”Hastings Center Report1978; 8: 23–30; KassL.R., Toward a more Natural Science: Biology and Human Affairs, New York, Free Press, 1985; see also Tomlinson, supra note 4 and Schneiderman, supra note 6.
20.
See Murphy, supra note 11.
21.
Presidents Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research, Deciding to Forego Life-sustaining Treatment, US Government Printing Office, 1983, p.240; See Brock, supra note 1; FarberS.J., “Ethics of Life Support and Resuscitation,”N Eng J M1988; 318: 1757.
22.
CallahanD., “Medical Futility, Medical Necessity: The Problem-Without-A-Name,”Hastings Center Report1991; 21(July): 30–35.
23.
CallahanD., Setting Limits: Medical Goals in an Aging Society.Simon and Schuster, New York, 1987.
24.
See American Thoracic Society and Task Force on Ethics, supra note 13.
25.
ApplebaumG.E.KingJ.E.FinucaneT.E., “The Outcome of CPR Initiated in Nursing Homes,”J Am Geriatr Soc1990; 38: 197–200; Council on Ethical and Judicial Affairs, AMA, Decisions Near the End of Life, 1991; see also Hacler, supra note 4; Lantos, supra note 12; and Taffett, supra note 17.
26.
MilesS. H.DriscollJ.McCuskerM., “CPR in Nursing Homes: Policy and Clinical Realities,”Minnesota Med1991; 74: 31–35; see also Taffett, supra note 17 and Applebaum, supra note 24.
27.
See Tomlinson, supra note 2, Chervernak, supra note 10.
28.
Department of Veterans Affairs, Withholding and Withdrawal of Life-Sustaining Treatment, M-2, Part I, Chapter 31.03.b(2).
29.
See AMA, supra note 15.
30.
See Taffett, supra note 17, and Braithwaite, supra note 4.
31.
AngellM., “The Case of Helga Wanglie. A New Kind (Right to Die) Case,”N Engl J Med.1991; 325: 511–512.
32.
See Hackler, supra note 4; Kass, supra note 18; and Applebaum, supra note 24.
33.
WeberM., The Development of Bureaucracy and its Relation to Law (translated from Wirtschaft und Gcsellshaaft, 1922) in Weber: Selections in Translation. Ed RuncimanW.G. (trans by MathewsE.) Cambridge University Press, 1978. p 351.
34.
LantosJ.D.SingerP.A.WalkerR.M., “The Illusion of Futility in Clinical Practice,”Amer J Med1989; 87: 81–84.
35.
See Hackler, supra note 4.
36.
See Blackhall, supra note 4.
37.
See Tomlinson, supra note 2; Youngner, supra note 2; Murphy, supra note 11; and AMA, supra note 15.
38.
MilesS.H., “Between a Dream and a Poem: Relational Perspectives on the Wanglie Case,”Kennedy Inst Ethics J.1992; 2(1): 61–72; see Farber, supra note 20; see Weber, supra note 43.
39.
See Paris, supra note 3.
40.
See Miles, supra note 3.
41.
See Callahan, supra note 22.
42.
BellahR.N.MadsenR.SullivanW.M., The Good Society, Alfred A. Knopf, New York, 1991, pp. 10–11.
43.
EllulJ., The Technological Society, Vintage Books, 1964, New York.
44.
CalabresiG.BobbittP., Tragic Choices.Norton & Co.New York, 1978.
45.
AaronH.SchwartzW.B., “Rationing Health Care: The Choice before Us,”Science1990; 247: 418–422.
46.
DanisM.ChurchillL., “Autonomy and the Common Weal,”Hastings Center Report1991; 21(1): 25–32.
47.
BellahR.N.MadsenR.SullivanW.M., “Culture and Character” (pp. 2.7–39) in Habits of the Heart, University of California Press, 1985.
48.
BerlinI., “Two Concepts of Liberty,” and (from the Introduction) “Positive versus Negative Liberty,” in Four Essays on Liberty, Oxford University Press, 1969; 118–172, xxxvii-lv; see also Paris, supra note 3, and Chervernak, supra note 10.
49.
JonsenA., “Bentham in a Box: Technology Assessment and Health Care Allocations,”Law Med Health Care1986; 14: 172–174.
50.
VeatchR.M., “Justice and the Economics of Terminal Illness,”Hastings Center Report1988; 18(4): 34–40; see also Brock, supra note 1; Murphy, supra note 11; and Farher, supra note 20.
51.
See Ellul, supra note 41.
52.
OlickR.S., “Brain Death, Religious Freedom, and Public Policy: New Jersey's Landmark Legislative Initiative,”Kennedy Institute of Ethics Journal1991; 1:4: 275–292.
Brophy v. New England Sinai Hospital, 398 Mass. 417;497 NE 2d 626 (1986); see also Paris, supra note 3; Miles, supra note 3; Reid, supra note 3; Ross, supra note 3; Weiser, supra note 5; and Smothers, supra note 5.
55.
Council on Ethical and Judicial Affairs, American Medical Association. Decisions to Forego Life-Sustaining Treatment for Incompetent Patients, 1991; sec also AMA, supra note 15; Faber-Langendoen, supra note 15; Jecker, supra note 18; and AMA, supra note 24.
56.
See Paris, supra note 3; Miles, supra note 3; Hackler, supra note 4; and Schneiderman, supra note 6.