End-of-Life Considerations for Patients of East Asian Descent

United States Census Bureau. Detailed race and ethnicity crosswalk: 2010 to 2020. 2023. Available from: https://www.census.gov/programs-surveys/decennial-census/technical-documentation/complete-technical-documents.html#dhc-and-dp [Last accessed: November 2023 ].

United States Census Bureau. Census bureau releases 2020 census data for nearly 1,500 detailed race and ethnicity groups, tribes and villages. 2023. Available from: https://www.census.gov/newsroom/press-releases/2023/2020-census-detailed-dhc-file-a.html [Last accessed: November 2023 ].

Kindig DA , Panzer AM , Nielsen-Bohlman L . (Eds.). Health literacy: A prescription to end confusion. National Academies. 2004. Available from: https://www.nap.edu/catalog/10883/health-literacy-a-prescription-to-end-confusion [Last accessed: November 2023 ].

Jang Y , Yoon H , Park NS , Chiriboga DA . Health vulnerability of immigrants with limited English proficiency: A study of older Korean Americans. J Am Geriatr Soc, 2016; 64(7):1498–1502; doi: 10.1111/jgs.14199

Sentell T , Braun KL . Low health literacy, limited English proficiency, and health status in Asians, Latinos, and other racial/ethnic groups in California. J Health Commun, 2012; 17 Suppl 3(Suppl 3):82–99; doi: 10.1080/10810730.2012.712621

Yoo GJ , Kim BW . Remembering sacrifices: Attitude and beliefs among second-generation Korean Americans regarding family support. J Cross Cult Gerontol, 2010; 25(2):165–181; doi: 10.1007/s10823-010-9116-8

Mori M , Kuwama Y , Ashikaga T , et al. Acculturation and perceptions of a good death among Japanese Americans and Japanese living in the U.S. J Pain Symptom Manage, 2018; 55(1):31–38; doi: 10.1016/j.jpainsymman.2017.08.010

Guo M , Kim S , Dong X . Sense of filial obligation and caregiving burdens among Chinese immigrants in the United States. J Am Geriatr Soc, 2019; 67(S3):S564–S570; doi: 10.1111/jgs.15735

Juckett G , Unger K . Appropriate use of medical interpreters. Am Fam Physician, 2014; 90(7):476–480.

Pan CX , Luo EJ , Wang E , et al. Top ten tips palliative care clinicians should know about caring for Chinese American patients. J Palliat Med, 2023; 26(3):423–430; doi: 10.1089/jpm.2022.0470

Chinese American Coalition for Compassionate Care. Glossary of end-of-life care terms. April 2022. Available from: https://www.caccc-usa.org/en/educationmat.html [Last accessed: February 2024 ].

Lim AJ , Lau CYH , Cheng CY . Applying the dual filial piety model in the United States: A comparison of filial piety between Asian Americans and Caucasian Americans. Front Psychol, 2021; 12:786609; doi: 10.3389/fpsyg.2021.786609

Glass AP , Chen LK , Hwang E , et al. A cross-cultural comparison of hospice development in Japan, South Korea, and Taiwan. J Cross Cult Gerontol, 2010; 25(1):1–19; doi: 10.1007/s10823-009-9108-8

Chung JE , Karass S , Choi Y , et al. Top ten tips palliative care clinicians should know about caring for Filipino American and Korean American patients. J Palliat Med, 2024; 27(1):104–111; doi: 10.1089/jpm.2023.0255

Lee MC , Hinderer KA , Alexander CS . What matters most at the end-of-life for Chinese Americans? Gerontol Geriatr Med, 2018; 4:2333721418778195; doi: 10.1177/2333721418778195

Shin DW , Choi J , Miyashita M , et al. Measuring comprehensive outcomes in palliative care: Validation of the Korean version of the Good Death Inventory. J Pain Symptom Manage, 2011; 42(4):632–642; doi: 10.1016/j.jpainsymman.2010.12.012

Pun J , Chow JCH , Fok L , et al. Role of patients’ family members in end-of-life communication: An integrative review. BMJ Open, 2023; 13(2):e067304; doi: 10.1136/bmjopen-2022-067304

Cheng SY , Suh SY , Morita T , et al. A cross-cultural study on behaviors when death is approaching in east Asian countries: What are the physician-perceived common beliefs and practices? Medicine (Baltimore). 2015; 94(39):e1573; doi: 10.1097/MD.0000000000001573

Turnbull M , Yu C , Wu XI . Practitioner accounts of end-of-life communication in Hong Kong, Mainland China and Taiwan: A systematic review. Patient Educ Couns, 2023; 106:31–41; doi: 10.1016/j.pec.2022.10.007

Cheng SY , Lin CP , Chan HY , et al. Advance care planning in Asian culture. Jpn J Clin Oncol, 2020; 50(9):976–989; doi: 10.1093/jjco/hyaa131

Liu TW , Wen FH , Wang CH , et al. Terminally Ill Taiwanese cancer patients’ and family caregivers’ agreement on patterns of life-sustaining treatment preferences is poor to fair and declines over a decade: Results from two independent cross-sectional studies. J Pain Symptom Manage, 2017; 54(1):35–45.e4; doi: 10.1016/j.jpainsymman.2017.02.013

Periyakoil VS . Psychosocial and cultural considerations in palliative care. In: Oxford American Handbook of Hospice and Palliative Medicine and Supportive Care. ( Yennurajalingam S and Bruera E . eds.). Second Edition. Oxford University Press, 2016: P252–253

Morita T , Oyama Y , Cheng SY , et al. Palliative care physicians’ attitudes toward patient autonomy and a good death in east Asian countries. J Pain Symptom Manage, 2015; 50(2):190–199.e1; doi: 10.1016/j.jpainsymman.2015.02.020

Jia Z , Stokes SC , Pan SY , et al. Heart to heart cards: A novel, culturally tailored, community-based advance care planning tool for Chinese Americans. Am J Hosp Palliat Care, 2021; 38(6):650–657; doi: 10.1177/1049909121989986

Jia Z , Leiter RE , Sanders JJ , et al. Asian American medicare beneficiaries disproportionately receive invasive mechanical ventilation when hospitalized at the end-of-life. J Gen Intern Med, 2022; 37(4):737–744; doi: 10.1007/s11606-021-06794-6