National Institute for Health and Care Excellence: NICE Guidance on Motor Neurone Disease. NICE. www.nice.org.uk/NG42 2016. (Last accessed October14, 2020).
3.
VeroneseS, ValleA, ChioA, et al.: The last months of life of people with amyotrophic lateral sclerosis in mechanical ventilation: A qualitative study. Amyotroph Lateral Scler Frontotemporal Degener, 2014; 15:499–504.
4.
BendittJO, SmithTS, TonelliMR: Empowering the individual with ALS at the end-of-life: Disease-specific advance care planning. Muscle Nerve, 2001; 24:1706–1709.
5.
SeeberAA, PolsJ, HijdraA, et al.: Advance care planning in chronic progressive neurological disease. What can we learn for ALS. A qualitative study. BMC Palliat Care, 2019; 18:50.