Restricted accessBrief reportFirst published online 2014-04
Helping Patients with Serious Illness Live Well through the Promotion of Adaptive Coping: A Report from the Improving Outpatient Palliative Care (IPAL-OP) Initiative
Continuity outpatient palliative care practice is characterized by long relationships between patients, families, and palliative care clinicians and by periods of relative stability when the disease and resultant symptoms are less active. Compared to inpatient palliative care, outpatient practice requires a greater focus on encouraging healthy coping and on helping patients to live well with serious illness. This paper discusses the opportunities to promote adaptive coping in the delivery of outpatient palliative care.
Get full access to this article
View all access options for this article.
References
1.
HuiD, ElsayemA, De la CruzM, BergerA, ZhukovskyDS, PallaS, et al.: Availability and integration of palliative care at US cancer centers. JAMA, 2010; 303:1054–1061.
2.
RabowMW, SchancheK, PetersenJ, DibbleSL, McPheeSJ: Patient perceptions of an outpatient palliative care intervention: “It had been on my mind before, but I did not know how to start talking about death.”. J Pain Symptom Manage, 2003; 26:1010–1015.
3.
FollwellM, BurmanD, LeLW, WakimotoK, SeccarecciaD, BrysonJ, et al.: Phase II study of an outpatient palliative care intervention in patients with metastatic cancer. J Clin Oncol, 2009; 27:206–213.
4.
BakitasM, LyonsKD, HegelMT, BalanS, BrokawFC, SevilleJ, et al.: Effects of a palliative care intervention on clinical outcomes in patients with advanced cancer: The project ENABLE II randomized controlled trial. JAMA, 2009; 302:741–749.
5.
BrumleyR, EnguidanosS, JamisonP, SeitzR, MorgensternN, SaitoS, et al.: Increased satisfaction with care and lower costs: Results of a randomized trial of in-home palliative care. J Am Geriatr Soc, 2007; 55:993–1000.
6.
TemelJS, GreerJA, MuzikanskyA, GallagherER, AdmaneS, JacksonVA, et al.: Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med, 2010; 363:733–742.
RabowMW, DibbleSL, PantilatSZ, McPheeSJ: The comprehensive care team: A controlled trial of outpatient palliative medicine consultation. Arch Intern Med, 2004; 164:83–91.
10.
YoongJ, ParkER, GreerJA, JacksonVA, GallagherER, PirlWF, et al.: Early palliative care in advanced lung cancer: A qualitative study. JAMA Intern Med, 2013; 173:283–290.
11.
WeismanA: On Dying and Denying. New York: Behavioral Publications, 1972.
12.
JacobsenJ, JacksonVA: A communication approach for oncologists: Understanding patient coping and communicating about bad news, palliative care, and hospice. J Natl Compr Canc Netw, 2009; 7:475–480.
13.
ClaytonJM, HancockK, ParkerS, ButowPN, WalderS, CarrickS, et al.: Sustaining hope when communicating with terminally ill patients and their families: A systematic review. Psychooncology, 2008; 17:641–659.
14.
BlockSD: Perspectives on care at the close of life: Psychological considerations, growth, and transcendence at the end of life: The art of the possible. JAMA, 2001; 285:2898–2905.
15.
QuillTE, ArnoldRM, PlattF: "I wish things were different:" Expressing wishes in response to loss, futility, and unrealistic hopes. Ann Intern Med, 2001; 135:551–555.
16.
SeligmanME: Authentic happiness: Using the new positive psychology to realize your potential for lasting fulfillment. New York: The Free Press, 2002.
17.
CsikszentmihalyiM: Flow: The psychology of optimal experience. New York: HarperCollins, 1990.
18.
KobauR, SeligmanME, PetersonC, DienerE, ZackMM, ChapmanD, et al.: Mental health promotion in public health: Perspectives and strategies from positive psychology. Am J Public Health, 2011; 101:e1–e9.
19.
PanagiotiM, GoodingPA, TarrierN: An empirical investigation of the effectiveness of the broad-minded affective coping procedure (BMAC) to boost mood among individuals with posttraumatic stress disorder (PTSD). Behav Res Ther, 2012; 50:589–595.
20.
TugadeMM, FredricksonBL, BarrettLF: Psychological resilience and positive emotional granularity: Examining the benefits of positive emotions on coping and health. J Pers, 2004; 72:1161–1190.
21.
SchreudersB, van OppenP, van MarwijkHW, SmitJH, StalmanWA: Frequent attenders in general practice: Problem solving treatment provided by nurses. BMC Fam Pract, 2005; 12; 6:42.
22.
PierceD: Problem solving therapy: Use and effectiveness in general practice. Aust Fam Physician, 2012; 41:676–679.
23.
AreanP, HegelM, VannoyS, FanMY, UnuzterJ: Effectiveness of problem-solving therapy for older, primary care patients with depression: Results from the IMPACT project. Gerontologist, 2008; 48:311–323.
24.
HiraiK, MotookaH, ItoN, WadaN, YoshizakiA, ShiozakiM, et al.: Problem-solving therapy for psychological distress in Japanese early-stage breast cancer patients. Jpn J Clin Oncol, 2012; 42:1168–1174.
25.
TemelJS, GreerJA, AdmaneS, GallagherER, JacksonVA, LynchTJ, et al.: Longitudinal perceptions of prognosis and goals of therapy in patients with metastatic non-small-cell lung cancer: Results of a randomized study of early palliative care. J Clin Oncol, 2011; 29:2319–2326.
26.
RayA, BlockSD, FriedlanderRJ, ZhangB, MaciejewskiPK, PrigersonHG: Peaceful awareness in patients with advanced cancer. J Palliat Med, 2006; 9:1359–1368.
27.
ClaessensMT, LynnJ, ZhongZ, DesbiensNA, PhillipsRS, WuAW, et al.: Dying with lung cancer or chronic obstructive pulmonary disease: Insights from SUPPORT study to understand prognoses and preferences for outcomes and risks of treatments. J Am Geriatr Soc, 2000; 48:S146–S153.
28.
GoldsteinNE, LynnJ: Trajectory of end-stage heart failure: The influence of technology and implications for policy change. Perspect Biol Med, 2006; 49:10–18.
29.
WrightAA, ZhangB, RayA, MackJW, TriceE, BalboniT, et al.: Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA, 2008; 300:1665–1673.
30.
JacksonVA, JacobsenJ, GreerJA, PirlWF, TemelJS, BackAL: The cultivation of prognostic awareness through the provision of early palliative care in the ambulatory setting: A communication guide. J Palliat Med, 2013; 16:894–900.
31.
JacobsenJ, ThomasJD, JacksonVA: Misunderstandings about prognosis: An approach for palliative care consultants when the patient does not seem to understand what was said. J Palliat Med, 2012; 16:91–95.
