After years of the palliative care community calling for more open access to hospice services, pediatric patients are now eligible to receive simultaneous hospice services and disease-directed therapy. We report on five types of challenges that our team has experienced when implementing concurrent care, illustrated through case studies of three medically complex pediatric patients.
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References
1.
FieldMJ, BehrmanRE. Institute of Medicine Committee on Palliative and End-of-Life Care for Children and Their Families: When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families. Washington, DC: National Academy Press, 2003.
2.
American Academy of Pediatrics Committee on Bioethics and Committee on Hospital Care: Palliative care for children. Pediatrics, 2000; 106,2 Pt 1:351–357.
WrightAW, KatzIT. Letting go of the rope: Aggressive treatment, hospice care, and open access. NEJM, 2007; 357,4:324–327.
5.
United Stateset al. Compilation of Patient Protection and Affordable Care Act (PPACA) as amended through November 1, 2010, including PPACA health-related portions of the Health Care and Education Reconciliation Act (HCERA) of 2010. Washington, DC: U.S. Government Printing Office, 2010.
6.
Covered Services. Code of Federal Regulations. 42:418. 202. 2010.
