RegnardC, MathewsD, GibsonL, ClarkeC. Difficulties in identifying distress and its causes in people with severe communication problems. Int J Palliat Nurs, 2003; 9:173–176.
2.
RegnardC, ReynoldsJ, WatsonB, MatthewsD, GibsonL, ClarkeC. Understanding distress in people with severe communication difficulties: Developing and assessing the Disability Distress Assessment Tool (DisDAT)J Intellect Disabil Res, 2007; 15,Pt 4:277–292.
3.
MatthewD, GibsonL. End of Life Care: A Resource Pack for Those Caring for or Supporting People with a Learning Disability at the End of Life. NHS North East, 2007.
4.
Tuffrey-WijneI, McEnhillL, CurfsL, HollinsS. Palliative care provision for people with intellectual disabilities: Interviews with specialist palliative care professionals in London. Palliat Med, 2007; 21:493–499.
5.
Tuffrey-WijneI, HollinsS, CurfsL. Supporting patients who have intellectual disabilities: A survey investigating staff training needs. Int J Palliat Nurs, 2005; 11:182–188.
6.
Tuffrey-WijneI. The palliative care needs of people with intellectual disabilities: A literature review. Palliat Med, 2003; 17:55–62.
7.
ReadS. The palliative care needs of people with learning disabilities. Int J Palliat Nurs, 1998; 4:246–251.
8.
ReadS. Learning disabilities and palliative care: Recognizing pitfalls and exploring potential. Int J Palliat Nurs, 2005; 11:15–20.
9.
Department of Health: End of Life Care Strategy: Promoting High Quality Care for All Adults at the End of Life. 2008.
10.
Department of Health: Gold Standards Framework. 2005.
11.
Department of Health: Signposts for Succes in Commissioning and Providing Health Services for People with Learning Disabilities. 1998.
12.
Department of Health: Valuing People: A New Strategy for Learning Disability for the 21st Century. A White Paper, 2001.
13.
The Scottish Government. The Same as You: A Review of Services for People with Learning Disabilities. 2000.
14.
Treat Me Right. Better Healthcare for People with a Learning Disability. London: Mencap, 2004.
15.
Death by Indifference. London: Mencap, 2007.
16.
Parliamentary and Health Service Ombudsman. Six Lives: The Provision of Public Services to People with Learning Disabilities. 2009.
17.
Department of Health: Valuing People Now: From Progress to Transformation—A Consultation on the Next Three Years of Learning Disability Policy. 2009.
18.
ToddS. Death counts: The challenge of death and dying in learning disability services. Learn Disabil Pract, 2004; 7:12–15.
19.
HarwoodI. A family facing end of life issues of a person with learning disabilities—A personal reflection. Br J Learn Disabil, 2007; 35:102–106.