Background: Family caregivers caring for a patient with terminal cancer may experience significant
psychological distress.
Objective: The purpose of this study was to determine the extent to which the family caregivers'
psychological distress is influenced by the patients' performance status while taking
into account individual characteristics of caregivers and their unmet needs.
Methods: Two hundred twelve family caregivers were assigned to three cohorts according
to the patient's performance status, as measured by the Eastern Collaborative Oncology Group
Functional Scale (ECOGS). Interview information was collected on the services and care provided,
as well as on the caregivers' characteristics and level of psychological distress.
Results: Family caregivers' psychosocial distress is strongly associated with the patients'
terminal disease progress and declined functioning. The level of psychological distress varies
from 25.2 to 33.5 (p = 0.0008) between the groups. Moreover, the percentage of caregivers with
a high level of psychological distress varies from 41% to 62%, while this percentage is estimated
at 19.2% in general population. A high distress index was significantly associated with
the caregiver's burden, the patient's young age, the patient's symptoms, the caregiver's young
age and gender, a poor perception of his/her health and dissatisfaction with emotional and
tangible support.
Conclusions: Family caregivers of patients in the advanced stages of cancer experience a
high level of psychological distress, which increases significantly as the patient loses autonomy.
Health care policies and programs need to be revisited in order to take the reality of
these patients and their families into account.
