Restricted accessResearch articleFirst published online 2019-2
Developing Age-Appropriate Supportive Facilities,Resources,and Activities for Adolescents and Young Adults with Cancer Across Departments and Diagnoses: A Single-Center Experience
In 2015, a support initiative for adolescents and young adults with cancer, Kræftværket, was created at Rigshospitalet, Copenhagen University Hospital in Denmark. The primary objective of Kræftværket is to provide youth-friendly support, care, and treatment practices. As Kræftværket provides services to both pediatric and adult departments, a network between patients who would otherwise not interact has been created. The initiative is managed by a Youth Coordinator, and specifically trained health professional Youth Ambassadors. Dedicated staff, including Youth Coordinator and the Youth Ambassadors, are essential in maintaining focus on current initiatives for this patient group.
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References
1.
BarrRD, FerrariA, RiesL, et al.Cancer in adolescents and young adults: a narrative review of the current status and a view of the future. JAMA Pediatr. 2016; 170(5):495–501.
2.
SteinbeckK, TownsS, BennettD. Adolescent and young adult medicine is a special and specific area of medical practice. J Paediatr Child Health. 2014; 50(6):427–31.
3.
PattersonP, McDonaldFE, ZebrackB, MedlowS. Emerging issues among adolescent and young adult cancer survivors. Semin Oncol Nurs. 2015; 31(1):53–9.
4.
NathanPC, Hayes-LattinB, SislerJJ, HudsonMM. Critical issues in transition and survivorship for adolescents and young adults with cancers. Cancer. 2011; 117:2335–41.
5.
EpelmanC. The adolescent and young adult with cancer: state of the art—psychosocial aspects. Curr Oncol Rep. 2013; 15:325.
6.
SperlingCD, PetersenGS, AndersenAM, et al.At være ung og få kræft. En spørgeskemaundersøgelse af de unges behov og oplevelser under og efter sygdom og behandling. [To be young and have cancer. A survey of young peoples needs and experiences during and after illness and treatment]. Kræftens Bekæmpelse [Danish Cancer Society], 2015. Accessed May25, 2018 from: https://www.cancer.dk/dyn/resources/File/file/6/5166/1450034259/at-vaere-ung-og-faa-kraeft-2015.pdf
7.
NassSJ, BeaupinLK, Demark-WahnefriedW, et al.Identifying and addressing the needs of adolescents and young adults with cancer: summary of an Institute of Medicine workshop. Oncologist. 2015; 20(2):186–95.
8.
TsangarisE, JohnsonJ, TaylorR, et al.Identifying the supportive care needs of adolescent and young adult survivors of cancer: a qualitative analysis and systematic literature review. Support Care Cancer. 2014; 22(4):947–59.
9.
ZebrackB, IsaacsonS. Psychosocial care of adolescent and young adult patients with cancer and survivors. J Clin Oncol. 2012; 30(11):1221–6.
10.
McIntyreP, Department of Child and Adolescent Health and Development WHOGeneva, WilliamsG, PeattieS. World Health Organization (WHO). Adolescent Friendly Health Services: an agenda for change. 2002. Accessed May25, 2018 from: http://whqlibdoc.who.int/hq/2003/WHO_FCH_CAH_02.14.pdf
11.
World Health Organization Department ofMaternal, Child, and Adolescent Health (MCA). Making health services adolescent friendly. Developing national quality standards for adolescent-friendly health services. World Health Organization (WHO). 2012. Accessed May25, 2018 from: http://apps.who.int/iris/bitstream/handle/10665/75217/9789241503594_eng.pdf?sequence=1
12.
MarrisS, MorganS, StarkD. ‘Listening to Patients’: what is the value of age-appropriate care to teenagers and young adults with cancer?. Eur J Cancer Care (Engl). 2011; 20(2):145–51.
13.
SawyerSM, AfifiRA, BearingerLH, et al.Adolescence: a foundation for future health. Lancet. 2012; 379(9826):1630–40.
14.
ZebrackBJ, MillsJ, WeitzmanTS. Health and supportive care needs of young adult cancer patients and survivors. J Cancer Surviv. 2007; 1(2):137–45.
15.
AmbresinAE, BennettK, PattonGC, et al.Assessment of youth-friendly health care: a systematic review of indicators drawn from young people's perspectives. J Adolesc Health. 2013; 52(6):670–81.
16.
ReedDR, OshrineB, PrattC, et al.Sink or collaborate: How the immersive model has helped address typical adolescent and young adult barriers at a Single Institution and Kept the Adolescent and Young Adult Program Afloat. J Adolesc Young Adult Oncol. 2017; 6(4):503–11.
17.
SperlingCD, PetersenGS, Hølge-HazeltonB, et al.Being young and getting cancer: development of a questionnaire reflecting the needs and experiences of adolescents and young adults with cancer. J Adolesc Young Adult Oncol. 2017; 6(1):171–7.
HertzPG, MeinikeD, BlixC. Youth ambassadors—a training program for nurses. Turk Arch Ped. 2013; Suppl 2:122.
21.
VilladsenKW, BlixC, BoisenKA. More than a break: the impact of a social-pedagogical intervention during young persons' long-term hospital admission—a qualitative study. Int J Adolesc Med Health. 2015; 27:19–24.
22.
BoisenKA, BoisenA, ThomsenSL, et al.Hacking the hospital environment: young adults designing youth-friendly hospital rooms together with young people with cancer experiences. Int J Adolesc Med Health. 2015; 29(4):e20150072.
ElsberndA, HjermingM, VislerC, et al.Cocreated Smartphone App to improve the quality of life of adolescents and young adults with cancer (Kræftværket): protocol for a quantitative and qualitative evaluation. JMIR Res Protoc. 2018; 7(5):e10098.
