Planning a Comprehensive Program in Adolescent and Young Adult Oncology–A Collision with Reality

Barr RD , Ferrari A , Ries L , et al. A narrative review of cancer in adolescents and young adults. Current status and a view of the future. JAMA Pediatrics., 2016; 170(5):495–501.

Teenage Cancer Trust. Accessed March 4, 2016 from: https://www.teenagecancertrust.org.

Taylor RM , Fern LA , Solanki A , et al. Development and validation of the Brightlight Survey, a patient-reported experience measure for young people with cancer. Health Qual Life Outcomes. 2015; 13:107.

Osborn M , Little C , Bowering S , Orme L . Youth cancer services in Australia: development and implementation. J Adolesc Young Adult Oncol. 2013; 2(3):118–24.

Johnson RH . AYA in the USA. J Adolesc Young Adult Oncol. 2013; 2(4):167–74.

Ferrari A . The challenge of access to care for adolescents with cancer in Italy: national and local pediatric oncology programs. J Adolesc Young Adult Oncol. 2013; 2(3):112–7.

Fern L , Whelan J . National Cancer Research Institute Teenage and Young Adult Clinical Studies Group: The United Kingdom approach to research. J Adolesc Young Adult Oncol. 2013; 2(4):161–6.

Rogers PC , DePauw S , Schacter B , Barr RD . A process for change in the care of adolescents and young adults with cancer in Canada. “Moving to Action”–the second Canadian international workshop. J Adolesc Young Adult Oncol., 2013; 2(2):72–76.

Windebank K , Morgan S . Starting an adolescent cancer unit: why does it take so long?. Pediatr Blood Cancer. 2004; 42(3):241–8.

Keegan THM , Lichtensztajn DY , Kato I , et al. Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study. J Cancer Surviv. 2012; 6(3):239–50.

Zebrack BJ , Corbett V , Embry L , et al. Psychological distress and unsatisfied need for psychosocial support in adolescent and young adult cancer patients during the first year following diagnosis. Psychooncology. 2014; 23(5):1267–75.

Adolescent and Young Adult Oncology Progress Review Group.. Closing the gap: Research and Care imperatives for adolescents and young adults with cancer. NIH Pub. NO. 06–6067. Bethesda, MD: National Cancer Institute, National Institutes of Health, and the LIVESTRONG Young Adult Alliance; 2006.

Bleyer A , O'Leary M , Barr R , Ries LAG (Eds). Cancer Epidemiology in Older Adolescents and Young Adults 15 to 29 Year of Age, Including SEER Incidence and Survival: 1975–2000. NIH Pub. No. 06–5767. Bethesda, MD: National Cancer Institute; 2006.

Furlong W , Rae C , Greenberg ML , Barr RD . Surveillance and survival among adolescents and young adults with cancer in Ontario. Int J Cancer. 2012; 131(11):2660–7.

Canadian Cancer Society's Steering Committee: Canadian Cancer Statistics 2009. Toronto: Canadian Cancer Society, 2009.

Fernandez C , Fraser GAM , Freeman C , et al. Principles and recommendations for the provision of healthcare in Canada to adolescent and young adult-aged cancer patients and survivors. J Adolesc Young Adult Oncol. 2011; 1(1):53–9.

Barr RD , Rogers P , Schacter B (Eds). Adolescents and young adults with cancer: towards better outcomes in Canada. Cancer. 2011; 117 (Suppl):2239–54.

Zebrack B , Matthews-Bradshaw B , Siegel S . Quality cancer care for adolescents and young adults. J Clin Oncol. 2010; 28(32):4862–7.