Genetic and Disability Discrimination During COVID-19

Disease Infosearch , Genetic Alliance (2020) Adult onset spinal muscular atrophy. Available at https://www.diseaseinfosearch.org/Adult%20onset%20spinal%20muscular%20atrophy/6737, accessed July 14, 2020.

Emanuel EJ , Persad G , Upshur R , et al. (2020) Fair allocation of scarce medical resources in the time of Covid-19. New Engl J Med, 382:2049-2055.

HHS Press Office (2020) OCR resolves complaint with Tennessee after it revises its triage plans to protect against disability discrimination. Available at https://www.hhs.gov/about/news/2020/06/26/ocr-resolves-complaint-tennessee-after-it-revises-its-triage-plans-protect-against-disability.html, accessed July 14, 2020.

National Center for Immunization and Respiratory Diseases (NCIRD), Centers for Disease Control and Prevention (2020) People with disabilities. Available at https://www.cdc.gov/coronavirus/2019-ncov/need-extra-precautions/people-with-disabilities.html, accessed July 14, 2020.

National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention (2020) Disability impacts all of us. Available at https://www.cdc.gov/ncbddd/disabilityandhealth/infographic-disability-impacts-all.html, accessed July 14, 2020.

Ne'eman A , New York Times (2020) ‘I Will Not Apologize for My Needs’. Available at https://www.nytimes.com/2020/03/23/opinion/coronavirus-ventilators-triage-disability.html, accessed July 14, 2020.

Office of Civil Rights, U.S. Department of Health and Human Services (2020) Discrimination on the basis of disability. Available at https://www.hhs.gov/civil-rights/for-individuals/index.html, accessed July 14, 2020.

Pendo E , Commission on Disability Rights, American Bar Association (2020) COVID-19 and disability-based discrimination in health care. Available at https://www.americanbar.org/groups/diversity/disabilityrights/resources/covid19-disability-discrimination, accessed July 14, 2020.

Savin K , Guidry-Grimes L , The Hastings Center (2020) Confronting disability discrimination during the pandemic. Available at https://www.thehastingscenter.org/confronting-disability-discrimination-during-the-pandemic, accessed July 14, 2020.

Suter SM (2019) GINA at 10 years: the battle over ‘genetic information’ continues in court. J Law Biosci, 5:495-526.

University of Washington Medical Center (2020) Material Resource Allocation Principles and Guidelines. Available at https://covid-19.uwmedicine.org/Screening%20and%20Testing%20Algorithms/Other%20Inpatient%20Clinical%20Guidance/Clinical%20Care%20in%20ICU/Material%20Resource%20Allocation.COVID19.docx, accessed July 14, 2020.

U.S. Department of Labor (2020) Americans with Disabilities Act. Available at https://www.dol.gov/general/topic/disability/ada, accessed July 14, 2020.