An Expert Discussion on Autism in the COVID-19 Pandemic

Wigham S , Rodgers J , South M , McConachie H , Freeston M . The interplay between sensory processing abnormalities, intolerance of uncertainty, anxiety and restricted and repetitive behaviours in autism spectrum disorder. J Autism Dev Disord. 2015; 45(4):943–952.

Griffiths S , Allison C , Kenny R , Holt R , Smith P , Baron-Cohen S . The Vulnerability Experiences Quotient (VEQ): A study of vulnerability, mental health and life satisfaction in autistic adults. Autism Res. 2019; 12(10):1516–1528.

Hirvikoski T , Mittendorfer-Rutz E , Boman M , Larsson H , Lichtenstein P , Bölte S . Premature mortality in autism spectrum disorder. Br J Psychiatry. 2016; 208(3):232–238.

Camm-Crosbie L , Bradley L , Shaw R , Baron-Cohen S , Cassidy S . ‘People like me don't get support’: Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality. Autism. 2019; 23(6):1431–1441.

Nicolaidis C , Raymaker DM , Ashkenazy E , et al. “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. Autism. 2015; 19(7):824–831.

Cassidy SA , Robertson A , Cogger-Ward H , Goodwin J , Rodgers J . Autism community priorities for suicide prevention. Available at: https://sites.google.com/view/mentalhealthinautism/projects/insar-policy-brief (accessed April 24, 2020).

Harper G , Smith E , Cassidy S , Cooke K , Adams S , Nielsen E , Davidson I . Autistica action briefing: Suicide prevention. Available at: www.nspa.org.uk/wp-content/uploads/2019/07/Autistica-Action-Briefing-Suicide-Prevention.pdf (accessed April 16, 2020).

Rodgers J , Herrema R , Garland D , et al. Uncertain futures: Reporting the experiences and worries of autistic adults and possible implications for social work practice. Br J Soc Work. 2019; 49(7):1817–1836.

Joyce C , Honey E , Leekam S , Barrett S , Rodgers J . Anxiety, intolerance of uncertainty and restricted and repetitive behaviour: Insights directly from young people with ASD. J Autism Dev Disord. 2017; 47(12):3789–3802.

Pelton MK , Crawford H , Robertson AE , Rodgers J , Baron-Cohen S , Cassidy S . Understanding suicide risk in autistic adults: Comparing the Interpersonal Theory of Suicide in autistic and non-autistic samples. J Autism Dev Disord. 2020 [Epub ahead of print]; DOI: 10.1007/s10803-020-04393-8.

Cassidy S , Bradley L , Shaw R , Baron-Cohen S . Risk markers for suicidality in autistic adults. Mol Autism. 2018; 9(1):42.

Mitchell P , Cassidy S , Sheppard E . The double empathy problem, camouflage, and the value of expertise from experience. Behav Brain Sci. 2019; 42:e100.

Hedley D , Uljarević M , Wilmot M , Richdale A , Dissanayake C . Understanding depression and thoughts of self-harm in autism: a potential mechanism involving loneliness. Res Autism Spectr Disord. 2018; 46:1–7.

Coventry City of Culture. Social belonging and connections in uncertain times. Available at: http://belong.coventry.domains (accessed April 28, 2020).

Cassidy SA , Pelton M . Autistic social belonging and connections in uncertain times. Available at: www.youtube.com/watch?v=PrrryR-8LFo (accessed April 28, 2020).

National Institute of Clinical Excellence. NICE updates rapid COVID-19 guideline on critical care. Available at: www.nice.org.uk/news/article/nice-updates-rapid-covid-19-guideline-on-critical-care (accessed April 24, 2020).

Ritt M , Ritt JI , Sieber CC , Gassmann KG . Comparing the predictive accuracy of frailty, comorbidity, and disability for mortality: a 1-year follow-up in patients hospitalized in geriatric wards. Clin Interv Aging. 2017; 12:293.

Kapp SK , Gillespie-Lynch K , Sherman LE , Hutman T . Deficit, difference, or both? Autism and neurodiversity. Dev Psychol. 2013; 49(1):59.

Dekker M . From exclusion to acceptance: Independent living on the autistic spectrum. In: Kapp SK , ed. Autistic Community and the Neurodiversity Movement. Singapore: Palgrave Macmillan; 2020; 41–49.

Gillespie-Lynch K , Kapp SK , Shane-Simpson C , Smith DS , Hutman T . Intersections between the autism spectrum and the internet: perceived benefits and preferred functions of computer-mediated communication. Intellect Dev Disabil. 2014; 52(6):456–469.

Gillespie-Lynch K , Kapp SK , Shane-Simpson C , Smith DS , Hutman T . Intersections between the autism spectrum and the internet: Benefits of computer-mediated communication, preferred internet uses, and favored modalities. Available at: https://www.researchgate.net/publication/340595539_Intersections_between_the_Autism_Spectrum_and_the_Internet_Benefits_of_Computer-_mediated_Communication_Preferred_Internet_Uses_and_Favored_Modalities (accessed April 24, 2020).

Ne'eman A , Albrecht K . How the disability community can respond to COVID-19: Ensuring people with disabilities can access prescription drugs during the current crisis. Available at: https://www.aapd.com/covid-19/ (accessed April 24, 2020).

Ne'eman A . How governments should maintain disability services during the pandemic. Available at: https://www.spectrumnews.org/opinion/viewpoint/how-governments-should-maintain-disability-services-during-the-pandemic/amp/?__twitter_impression=true&fbclid=IwAR100xvqDVo49XT40w5nlv6MnSgL14XDN9QRZXjzXZYXXwFDMsK_fQnXCKg (accessed April 24, 2020).

Ne'eman A . ‘I Will Not Apologize for My Needs’. Even in a crisis, doctors should not abandon the principle of non-discrimination. Available at: https://www.nytimes.com/2020/03/23/opinion/coronavirus-ventilators-triage-disability.html (accessed April 24, 2020).

Centres for Medicare and Medicaid Services. National Coverage Determination (NCD) for Speech Generating Devices (50.1). Available at: https://www.cms.gov/medicare-coverage-database/details/ncd-details.aspx?NCDId=274&ncdver=2&DocID=50.1&bc=gAAAABAAAAAA& (accessed April 28, 2020).

Society for Disability Studies. The SDS@OSU conference was held entirely online via Zoom April 4–7. Available at: https://disstudies.org/ (accessed April 24, 2020).

Coronavirus Act. 2020. Available at www.legislation.gov.uk/ukpga/2020/7/contents/enacted (accessed April 24, 2020).

UK coronavirus rules relaxed for people with autism and learning disabilities. Available at: https://www.theguardian.com/world/2020/apr/14/uk-coronavirus-rules-autism-learning-disabilities-lockdown (accessed April 24, 2020).

Nottinghamshire Autism Police Partnership. The Health Protection (Coronavirus) Regulations and Autism: A Guide for Police Officers and Staff. Available at: https://www.nottingham.ac.uk/research/groups/autismandpolicing/documents/coronavirus-regulation-and-autism-guidance.pdf (accessed April 24, 2020).

Autistica. Hosting accessible online events, meetings and webinars. Available at: https://www.autistica.org.uk/what-is-autism/accessible-online-events (accessed April 30 2020 ).