Improving the Rigor of Research on Autism in Adulthood Requires Valid and Reliable Measurement Tools

Abstract

Get full access to this article

View all access options for this article.

References

U.S. Department of Health and Human Services. Report to Congress: Young Adults and Transitioning Youth with Autism Spectrum Disorder. October 2017. Available at https://www.hhs.gov/sites/default/files/2017AutismReport.pdf (accessed April 21, 2020).

World Health Organization. Sixty-seventh World Health Assembly, Geneva, 2014. Available at https://www.who.int/mental_health/maternal-child/WHA67.8_resolution_autism.pdf (accessed April 21, 2020).

World Health Organization. Retrieved from the World Health Organization web site: Autism Spectrum Disorders, 2019. Available at https://www.who.int/en/news-room/fact-sheets/detail/autism-spectrum-disorders (accessed April 20, 2020).

United Nations. World Autism Awareness Day event, 2019. Available at https://www.un.org/en/events/autismday (accessed April 21, 2020).

Office of Autism Research

Coordination

, National Institute of Mental

Health

, Autistica, Canadian Institutes of Health

Research

, and Macquarie

University

. 2016 International Autism Spectrum Disorder Research Portfolio Analysis Report. October 2019. Available at https://iacc.hhs.gov/publications/international-portfolio-analysis/2016 (accessed April 20, 2020).

Brugha

, Doos

, Tempier

, Einfeld

, Howlin

. Outcome measures in intervention trials for adults with autism spectrum disorder: A systematic review of assessments of core autism features and associated emotional and behavioural problems. Int J Methods Psychiatr Res, 2015; 24(2):99–115.

National Institute for Health and Clinical Excellence. The NICE Guideline on Recognition, Referral, Diagnosis and Management of Adults on the Autism Spectrum (2012). Available at https://www.nice.org.uk/guidance/cg142 (accessed April 21, 2020).

Interagency Autism Coordinating Committee (IACC). 2016–2017 Interagency Autism Coordinating Committee Strategic Plan for Autism Spectrum Disorder. October 2017. Available at https://iacc.hhs.gov/publications/strategic-plan/2017 (accessed April 21, 2020).

National Institutes of Health (NIH), Federal

RePORTER

. Available at https://federalreporter.nih.gov (accessed April 21, 2020).

10.

Grants.gov . Available at https://www.grants.gov (accessed April 21, 2020).

11.

Department of Defense

CDMRP

. Autism Research Program Strategic Plan. Available at https://cdmrp.army.mil/arp/pdfs/ARP%20Strategic%20Plan.pdf (accessed April 21, 2020).

12.

Government of Canada, Research Awards and Funding. Available at https://www.canada.ca/en/services/science/researchfunding.html (accessed April 21, 2020).

13.

UK Research and Innovation (UKRI), Funding Opportunities. Available at https://www.ukri.org/funding/funding-opportunities (accessed April 21, 2020).

14.

Australian Research Council (ARC), Grants. Available at https://www.arc.gov.au/grants (accessed April 21, 2020).

15.

Patient Centered Outcomes Research Institute (PCORI), Funding Opportunities. Available at https://www.pcori.org/funding-opportunities (accessed April 21, 2020).

16.

National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR): 2018–2023 Long-Range Plan. Washington, DC: Department of Health and Human Services, Administration for Community Living, 2019. Available at https://acl.gov/sites/default/files/about-acl/2019-01/NIDILRR%20LRP-2018-2023-Final.pdf