eSCCIP-SP: Adapting an eHealth Intervention for Spanish-Speaking Parents of Children With Cancer

Abstract

Objective: Psychosocial interventions for Latinx parents of children with cancer (PCC) are scarce, despite documented psychosocial risk in this population. This article describes the development of El Programa Electrónico de Intervención para Superar el Cancer Competentemente (eSCCIP-SP), a Spanish-language psychosocial intervention for PCC, adapted from an existent eHealth intervention for English-speaking PCC (eSCCIP). Methods: The adaptation process was multifaceted and followed best practice guidelines from the National Standards for Culturally and Linguistically Appropriate Services literature. eSCCIP intervention materials were first translated and reviewed by Spanish-speaking members of the study team, consultants, and medical interpreters. New video materials were created with Spanish-speaking families, and cultural adaptations were made to intervention materials. The completed intervention was refined via Think Aloud Testing with Spanish-speaking PCC and by expert review. Results: A user-centered, multistep adaptation process was used to develop and evaluate eSCCIP-SP. Results from Think Aloud Testing were positive, with the majority of suggested comments related to phrasing and edits. Participants provided positive feedback about the intervention and its potential impact. Conclusions: The rigorous development of eSCCIP-SP provides a model for adapting psychosocial interventions for Spanish-speaking PCC. Initial results suggest that eSCCIP-SP is an acceptable psychosocial intervention.

Implications for Impact Statement

eSCCIP-SP is a psychosocial eHealth intervention for Spanish-speaking parents and caregivers of children with cancer. This intervention has the potential to reduce a critical gap in care in terms of supporting this important population by providing flexible, accessible, high-quality psychosocial care to Spanish-speaking PCC.