Parent-Reported Outcomes Associated With Utilization of a Pediatric Cancer School Consultation Program

Abstract

Childhood survivors of central nervous system (CNS) cancers are at risk for cognitive and physical late effects that can negatively influence their school functioning. Although many hospital-based programs assist in school re-entry for pediatric cancer patients, few address the long-term academic needs of this population. This study examined parent-reported outcomes associated with participation in a hospital-based school liaison program (SLP) to address the long-term needs of survivors of pediatric CNS cancers. Participants included 93 parents (91% mothers, 94% Caucasian) of children enrolled in a hospital-based SLP. Parents completed measures of SLP services received and their perceptions of their own ability to navigate and understand the special education system, including perceived understanding of their children’s learning needs, confidence in their own ability to advocate, belief in being informed of available services, difficulty obtaining school supports, and belief that a child is meeting his or her academic potential. Univariate logistic regressions showed that longer time spent receiving SLP services, having an SLP clinician participate at school meetings, and having an SLP clinician visit a patient’s school were uniquely associated with numerous positive parent-perceived outcomes. Understanding outcomes associated with participation in programs that support collaborations between a child’s home, school, and hospital can inform best practices for pediatric cancer survivors and the multiple systems of care involved in their development.