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First published 2009-9

Benefits and Burdens of Participation in a Longitudinal Clinical Trial

Jaime Lazovski, Marcelo Losso, Benjamin Krohmal [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2023-2

Caregiver Perspectives on the Benefits,Burdens,and Moral Distress of Participation in Cancer Clinical Trials

Cynthia P. Paidipati, Anessa M. Foxwell, Kim Mooney-Doyle [...]

Journal of Family Nursing

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Research article

First published 2019-1

Unique Burdens of Pediatric Clinical Trials in Duchenne Muscular Dystrophy,April 20-21,2017,Bethesda,Maryland,USA

Timothy Franson, Kathi Kinnett, Timothy P. Cripe

Therapeutic Innovation & Regulatory Science

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Research article

First published 2018-1

Understanding Treatment Burden and Quality of Life Impact of Participating in an Early-Phase Pediatric Oncology Clinical Trial: A Pilot Study

Stacey Crane, Lori Backus, Beth Stockman [...]

Journal of Pediatric Hematology/Oncology Nursing

Open access

Research article

First published 2024-11

Decentralized Clinical Trials at Home: Commentary on Caregivers’ Burden

Opeyemi Bolajoko, Dottington Fullwood, Mahin Colissa [...]

Cancer Control

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Research article

First published 2018-7

Development and Preliminary Testing of the Perceived Benefit and Burden Scales for Cancer Clinical Trial Participation

Connie M. Ulrich, Qiuping (Pearl) Zhou, Sarah J. Ratcliffe [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2019-5

Perceived Burden of Completion of Patient-Reported Outcome Measures in Clinical Trials:: Results of a Preliminary Study

Serge Bodart, Bill Byrom, Mabel Crescioni [...]

Therapeutic Innovation & Regulatory Science

Open access

Research article

First published 2024-03-05

Facioscapulohumeral Muscular Dystrophy European Patient Survey: Assessing Patient Reported Disease Burden and Preferences in Clinical Trial Participation

Megan M. McNiff, Sheila Hawkins, Bine Haase [...]

Journal of Neuromuscular Diseases

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Research article

First published 2022-11

Risk Factors for High Symptom Burden Three Months after Traumatic Brain Injury and Implications for Clinical Trial Design: A Transforming Research and Clinical Knowledge in Traumatic Brain Injury Study

Nancy Temkin, Joan Machamer, Sureyya Dikmen [...]

Journal of Neurotrauma

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Research article

First published 2019-9

Baseline endometriosis-associated pain burden: Data from 1600+ women enrolled in elagolix clinical trials

Nicholas Leyland, Stephanie J Estes, Samantha Eichner [...]

Journal of Endometriosis and Pelvic Pain Disorders

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