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Research article

First published 2008-05

Burden and Benefit of Psychosocial Research at the End of Life

Hayley Pessin, Michele Galietta, Christian J. Nelson [...]

Journal of Palliative Medicine

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Research article

First published 2019-08

The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review

Meaghann S. Weaver, Kim Mooney-Doyle, Katherine Patterson Kelly [...]

Journal of Palliative Medicine

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Research article

First published 2018-5

Study partners perform essential tasks in dementia research and can experience burdens and benefits in this role

Betty S Black, Holly A Taylor, Peter V Rabins [...]

Dementia

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Article commentary

First published 2019-12

Commentary 2: Qualitative Research with Vulnerable Persons—How to Ensure that Burdens and Benefits are Proportional and Fairly Distributed

Astrid Gieselmann, Simone Agnes Efkemann, Matthé Scholten

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2021-11

“It Can Be Hard But It's Not Bad”: Three Questions to Solicit Caregiver Perceptions of Benefits and Burdens to Participating in Pediatric Palliative Care Research

Cheryl Reggio, Catriona Mowbray, Mia K. Waldron [...]

Journal of Palliative Medicine

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Research article

First published 2019-4

Japanese Students Do See the Value of Asking About Child Abuse and Trauma in the Research Setting

Carolyn B. Allard, Elizabeth Straus, Mai I. Ra [...]

Journal of Empirical Research on Human Research Ethics

Open access

Research article

First published 2025-2

Characteristics,Motivations,and Preferences of Healthy Volunteers in Phase I Clinical Trials in Sweden

Erik Rein-Hedin, Mårten Schultzberg, Folke Sjöberg [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2019-12

Do Researchers in Empirical Ethics Studies Have a Duty to Act Upon their Findings? Case Study in End-of-Life Decision Making

Eva C. Winkler

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2017-7

The Meanings of Helping: An Analysis of Cystic Fibrosis Patients’ Reasons for Participating in Biomedical Research

Emily Christofides, Karla Stroud, Diana Elizabeth Tullis [...]

Journal of Empirical Research on Human Research Ethics

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Research article

First published 2021

The Ethical Implications of Using Social Media to Engage and Retain Justice-Involved Youth in Behavioral Health Research

Christopher A. Rodriguez, Lakshmi Gopalakrishnan, Margareth Del Cid [...]

Journal of Empirical Research on Human Research Ethics

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